Barney and Elliot

Twin-to-twin transfusion syndrome

My twins shared a placenta but had their own amniotic sacs (MCDA). Early scans were fine, but at 17 weeks we were told the babies had developed TTTS. The scan revealed that it was severe, and we were told that if we did nothing both babies would die. The only treatment available was to drain some amniotic fluid and/or intrauterine laser surgery to sever the blood vessels connecting the babies. I had surgery within an hour of the scan. A thin tube was inserted into tummy and womb through which a tiny camera and laser were inserted. All the connecting vessels were identified and cauterised. It took about 20 minutes, and the chances of survival were given to us as 33% of both surviving, 33% of one surviving and 33% of neither surviving. The biggest risk was in the hour after the surgery but the scan later that evening showed two heartbeats. We breathed a sigh of relief at the scan a week later when we saw two healthy babies. The babies were delivered by c-section at 27 weeks – when the smaller twin’s heart rate started to drop. They spent 10 weeks in SCBU. They are now nearly two, and thriving.”

Sandra from East Dulwich, mum to Barney and Elliot, 2

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